ESID (European Society for Immunodeficiencies). 23-12-2019 https://mailchi.mp/c9da40e27468/newsesid-winter-edition-december-2019?e=75f6add614
Message from the President:
Dear Friends and Colleagues ESID Members,
Another year has come to its ending. The field of primary immunodeficiencies, or inborn errors of immunity, is still growing at tremendous speed. Despite the advances of improved molecular diagnosis, the clinical management of many primary immunodeficiencies is still extremely challenging. The various WPs within ESID truly are committed to aiding in this challenge as you can learn in the Chairs’ contributions to this Newsletter.
We also look back on a successful 2019 Focused Meeting – the theme “PID and malignancy” was timely and well received by the participants – it gave rise to novel research and clinical interests. Thanks again to the local SC and Jutte as a truly engaged local host.
See full Newsletter in the link above.
IPOPI (International Patient Organisation for Primary Immunodeficiencies) 16-12-2019 https://mailchi.mp/858c50c3af72/e-news-winter19-3087489?e=213bc260c3
There is something about looking at another year, and even a new decade, that encourages reflection. On the past and on the future.
A look back to the last quarter shows our growing activities on awareness and advocacy and among these, we organized IPIC2019, the 4th edition of the International Primary Immunodeficiencies Congress!
IPIC2019 was held in Madrid and gathered numerous physicians and PID community stakeholders from 70 countries around a high quality scientific programme designed to review key diagnosis and clinical care developments in the field of PIDs. Science is incredibly fruitful in our field, as evidenced by the announcement that well over 400 genes have been identified by the IUIS who, in fact, have very recently published their new classification describing 456 PIDs.
See full e-News Winter 2019 in the link above.
ESID (European Society for Immunodeficiencies). 02-12-2019 https://mailchi.mp/d7bbfa4f5755/esid-2018-summer-school-apply-today-2654411?e=75f6add614
If you are inspired by a career in the field of primary immunodeficiencies, whether in the clinic, the lab, or a combination, this will be an excellent opportunity to update your knowledge, hear about the latest diagnostic tools, and learn from leaders in the field who see and manage patients from the whole spectrum of primary immunodeficiency. You will also benefit from networking and socialising with your peers.
Applications OPEN: From 2 December, 2019 until 6 January, 2020.
Clara Franco Jarava (ESID Juniors Working Party Chairperson) 16-11-2019 https://mailchi.mp/a42212b0c9a2/esid-mentoring-programme-2020-2654407?e=52180fe7b0
The purpose of the programme is to facilitate that promising individuals starting in the world of PID develop into successful professionals in those regions where the awareness and visibility of PID is yet poorly represented. Mentors should have enough experience in diagnostic/treatment/research in Primary Immunodeficiencies and a wish to share his/her knowledge with Junior researchers.
See all details in the link above.
IPOPI (International Patient Organisation for Primary Immunodeficiencies) 27-09-2019 https://mailchi.mp/193ebc0b5cd8/e-news-autumn19-3010485?e=213bc260c3
We are stronger together than when we are alone! This old principle turns out to be truer than ever! Thanks to a successful joint application by IPOPI and IUIS (International Union of Immunological Societies) and the support of numerous medical and scientific societies, PID diagnostic tests have been included in the World Health Organization (WHO)’s Essential Diagnostics List (EDL) published on July 9, 2019. Our most sincere thanks go to the doctors from all the continents who helped in providing the advice and data that were needed to help IPOPI prepare the submission to WHO and fulfill all necessary requirements. We are delighted by this first result that put PID diagnostics on the map. Similarly to the WHO List of Essential Medicines, the WHO EDL aims to facilitate access to diagnosis by providing evidence-based guidance to countries. But we want to go further...
See full e-News Autumn 2019 in the link above.
ESCCA Board 13-09-2019 https://www.escca.eu
Find attached the newsletter (September 2019) of the European Society for Clinical Cell Analysis (ESCCA).
IPOPI (International Patient Organisation for Primary Immunodeficiencies) 07-09-2019 https://mailchi.mp/65f969be5da5/212-approved-abstracts?e=66f6ac33e7
The IPIC2019 Organising and Scientific Committees have carefully reviewed all abstracts and approved 212 for poster presentation, a 21% increase from 2017. The 3 best posters have now been identified: 1st place: Dr. Del Pino Molina, L. (Spain) / 2nd place: Dr Karim, F. (netherlands) / 3rd place: Dr Raki Shirzad M. (Iran). The winners will be awarded a monetary prize and a dedicated session.
ESID (European Society for Immunodeficiencies). 02-09-2019 https://mailchi.mp/kenes.com/newsesid-spring-edition-august-2019?e=75f6add614
Message from the President:
Dear colleagues and friends,
Time flies and September is approaching. If you took time off, I hope you enjoyed nice and refreshing holidays. With the Focused Meeting in Brussels literally around the corner, I welcome you all wholeheartedly, not only for the special focus on malignancy but also because you will get updates on recently described PID as well as some truly exciting unpublished work. Moreover, it is especially nice to welcome you to ESID in Brussels, the city where I was born, in my home country.
We are also working intensively with Aarn Huissoon and Peter Arkwright to prepare at least as nice a Biennial Meeting in Birmingham. Stay tuned and block out your agendas already for October 14-17, 2020.
As communicated in a previous letter, we have also worked on a draft strategic plan for ESID, starting to define and redefine our vision, mission and priorities as a society.
See full Newsletter in the link above.
ESCCA Board 07-07-2019 https://www.escca.eu
-ESCCA 2019: Flowrescence in the Fjords.
-ESCCA 2020: Save the Date!
-Reminder: 6th International Summer School on Cytometry.
-4th ISCCA Congress.
-Announcement and Call for Papers.
-Flow Cytometry in Greece.
-Review of the 1st Summer School in Kos.
IPOPI 25-06-2019 https://mailchi.mp/66767ba247cb/e-news-summer-2019?e=213bc260c3
“Putting primary immunodeficiency patients at the centre of their care”, the 2019 edition of World Primary Immunodeficiencies Week intended to place patient-centered care at the heart of the campaign. And what a successful outcome! First of all, let’s talk about how pleased we are to have had so many of our NMOs committed in this year’s issue. Thanks to the great support of its corporate partners, IPOPI was able to support 31 NMOs in their awareness and advocacy efforts. PIDs stood high on the agenda in all continents, with so many countries involved in an array of campaigns and awareness raising programmes including family meetings, exhibitions, stakeholders’ roundtables, media campaign, races and challenges, trainings…
See full e-News Summer 2019 in the link above.